Columbia child in search of donor for rare blood disease treatment


COLUMBIA, S.C. (WIS) -A Columbia family is seeking help from the community for their child with a rare disease.

Amari’s journey began in March when the 11-year-old told her mother she was feeling tired and couldn’t enjoy PE in school. A diagnosis revealed a rare blood disease, Aplastic Anemia. The disease is a result of bone marrow failure. It causes fatigue, easy bruising, bleeding and vulnerability to infections. Further complications can include heart failure or leukemia.

To cure this disease a blood stem cell transplant from bone marrow is needed from a genetically-matched donor. Amari does not have any perfect matches within her immediate family. The National Marrow Donor Program said direct matches are only found in families about 30% of the time.

Currently she does not have a donor in the registry. Anyone interested in trying to join the registry can do so at the link here.

The organization said successful genetic matches typically share an ethnic background with a patient and are younger individuals. Only individuals between 18 and 40 are eligible to donate. It also shared that up to 85% of donors donate through a process called Peripheral Blood Stem Cell Donation, which is a process similar to donating platelets.

Organizers said donors will have all expenses covered and no expense to them. More information about the donation process can be found at the link here.

Amari is need of a bone marrow transplant to treat her rare disease.
Amari is need of a bone marrow transplant to treat her rare disease.(NMDP)

Notice a spelling or grammar error in this article? Click or tap here to report it. Please include the article’s headline.



Source link

Leave a Reply

Your email address will not be published.

How Miles Teller Totally Broke Royal Protocol Meeting Prince William and Kate Middleton Mila Kunis Reveals Why She and Ashton Kutcher Don’t Close Bathroom Doors at Home With Kids Khloe Kardashian and Tristan Thompson Were Engaged for 9 Months Before Paternity Lawsuit Selena Gomez Speaks Out About Kindness After Hailey Bieber’s Tell All Interview Shane Warne’s child, Jackson, shares recordings of ‘harmful ladies despising’ powerhouse Andrew Tate: ‘I really do concur with a couple of the things he says’ Kate and William to greet Americans ‘sleeping on the streets’ amid US visit ‘He said “take your bra off”… I was 15’: Supermodel Kate Moss reveals in unflinching detail how she fled a photoshoot in tears after being targeted by fashion industry predator as a teenager How to get early access to the MultiVersus open beta – usnewspress Gunman kills 3 people in Indiana mall shooting, police say Top 10 sizzling sex secrets to Spice Up Your Sex Life Stellantis Announces Termination of Jeep Venture With China’s GAC Memphis police thwart potential mass shooting at arena: Officials 4 dead after argument between 2 groups leads to shooting at north Harris County apartment complex, sheriff says US soprano, offended by blackface, pulls out of Italy opera 10 Top Romantic Getaways in New Jersey Ricky Martin’s Attorney Says Allegations of a Sexual Relationship with His Nephew Are ‘Untrue’ 8 Best Semiconductor Stocks To Buy Amid a Global Chip Shortage : USA Le’Veon Bell Reflects on Lost Season With Steelers in Retirement Post Updates on Tiger Woods from Round 1 of The Open PETE ALONSOI’M DEALING W/ ‘PRETTY BAD PTSD’… Over March Car Crash